The Medical Cannabis Clinics (TMCC), has today launched a patient registry for up to 5,000 patients. The launch follows a recent policy change allowing bulk supply to be imported and held in the UK.
The TMCC Access Programme will deliver:
The registry will collect real world data so that a body of evidence of quality-of-life and other patient related outcomes can be collected and provided to government groups and the NHS. This will give further reassurance of safety and efficacy when patients use medical cannabis. Patients will finally see the speed of delivery and consistency of medicines along with the realistic pricing that is to be expected, while recording critical data that will help secure an eventual NHS pathway for patients.
Hannah Deacon, mother of child epilepsy sufferer, Alfie Dingley, and long term patient advocate, said:
“It’s been a year since the rescheduling and I see first-hand that there remains a lot of families unnecessarily suffering. The recent change permitting bulk imports is an important step but there is still a long road ahead. This initiative by The Medical Cannabis Clinics will offer many patients a lifeline by making it substantially easier, quicker and vastly reducing the costs.”
According to a recently published YouGov poll 1.4 million Britons are using street cannabis to treat chronic and medically-diagnosed conditions, which demonstrates the extraordinary lengths patients are having to go to, when many of these patients should be receiving medical cannabis through the legal medical channels.
Speaking about the launch of the new patient access programme, Chief Medical Officer, Prof. Mike Barnes said:
“The TMCC Access Programme breaks down one of the biggest hurdles for patients in getting access to affordable, safe treatments prescribed to patients by experts in a clinical and legal setting.”
Prof. Barnes added:
“The collection of a body of data is of critical importance in building up the data points necessary to demonstrate the efficacy of medical cannabis for a multitude of conditions.”
Gathering of real world data on patients will be anonymised, and there will be a focus on patients suffering with: spasticity, pain, anxiety, or with neurological conditions. Whether the patient is entitled to a prescription will be down to the discretion of the patient’s clinician. In order to be approved for the registry, patients can sign up now by visiting www.themedicalcannabisclinics.com